Summary

What is the most important document you can create to help ensure that your loved one has the best possible life after you die? Most people would think of a special needs trust or a comprehensive set of estate planning documents. While we would agree that these documents are essential, a care plan for your child’s future may be the most valuable thing you can leave behind.

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What is the most important document you can create to help ensure that your loved one has the best possible life after you die? Most people would think of a special needs trust or a comprehensive set of estate planning documents. While we would agree that these documents are essential, a care plan for your child’s future may be the most valuable thing you can leave behind. Completing a care guide, also referred to as a Letter of Intent, can be an emotionally challenging process, but the benefits far exceed the emotional cost. A well-drafted care guide provides a detailed roadmap for future caregivers to maintain the quality of life for your child after you are gone. The format and the contents are up to you. The key to a well-drafted document is that it contains the information needed by future caregivers. In short, all the stuff that parents know about their child that they would want others to know, needs to be included. Some families will create a document and print and distribute paper copies to the people who will play a role in their child’s future. More commonly, we see families sharing and updating their documents electronically. There are some new services that prompt parents to upload information and images regarding various topics that can then be shared using passwords given to the future caregivers. In short, there is no wrong way to develop your care guide as long as you do something. People and agencies that you intend to play a role in the future caregiving of your child should be made aware of your intentions. You can share your expectations with them and include their input in your next update of the document. It is essential that they know the document exists and how they will get access to it either during your lifetime or after you die. If you have any questions or would like additional assistance about creating the document, please contact us directly or visit us on Spotify, The Special Needs Voice (link), to hear our recent podcast on the importance of creating a Care Guide.

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